Caring for a Loved One with Parkinson’s Disease | Elderlink Home Care

According to the Parkinson’s Foundation, about a million people in the United States (and 10 million people worldwide) are living with Parkinson’s disease, while another 60,000 Americans receive the diagnosis every year. This progressive nervous system disorder is most common in those over age 60, but it can impact younger individuals, as well.

If someone in your life suffers from Parkinson’s, you well know the challenges they face with tremors, imbalance, stiffness and coordination. As the disease progresses, these tremors may start to interfere with daily life, and they might face additional symptoms like depression, emotional issues, sleep disorders, trouble eating and incontinence.

Securing home care services, becoming a caregiver yourself, or a combination of both options will help your loved one live the highest quality of life possible within the scope of his or her symptoms. The Michael J. Fox Foundation, Caring.com, and Healthline share these suggestions to help offer the best care for your loved one with Parkinson’s:

Be There for Medical Visits

Your loved one will appreciate the moral support of your presence at the doctor’s office, but it’s also important that you listen carefully and take notes regarding their condition. They may not be able to remember all the details. The doctor may also be able to offer some advice to you as a caregiver.

Stay Informed

Read as much as you can about Parkinson’s so you understand the disease and what your loved one will go through. You’ll also want to be well-versed about your loved one’s insurance: what type of coverage do they have for prescriptions, therapy and long-term needs?

Watch for Changes

Parkinson’s doesn’t affect everyone the same way. Some cases progress more quickly than others. Watch your parent or loved one carefully to notice any changes in their movement or behavior as the result of the disease or perhaps as a side effect of certain medications. Always report any changes to their doctor. They might not notice the changes or forget to tell their doctor.

Get Organized

You’ll need to keep track of medical and therapy appointments as well as prescriptions. Help ensure your parent or loved one is taking all necessary medications on schedule.

Listen

Allow your loved one to retain as much independence as possible. They may need more help later on but continue to offer what is necessary and welcome. Listen as they talk about their needs and concerns. Chances are, they are also afraid and might appreciate the opportunity to talk about their feelings.

Ask for Help

It takes a team to care for a loved one with Parkinson’s. Don’t hesitate to ask for help when you need it. This is essential to prevent caregiver burnout. Being the best possible caregiver for your loved one with Parkinson’s means taking care of yourself, too. You may find that some in-home assistance to help with simple tasks such as grocery shopping and errands might provide you with a lot of relief and extra time.

You might also consider joining a support group for caregivers. It’s helpful to have the support and advice of people who are experiencing a similar journey.

Get Professional Assistance

In addition to your loved one, you may also have a career and a family that need your attention. Working with a home care company will allow yourself more time to focus on your loved one with Parkinson’s as well as the other areas of your life. It’s not unusual to feel overwhelmed or stressed caring for a loved one. Be sure to seek help when you need it.

Elderlink Home Care, Inc. has been serving the Denver area with home care assistance for over 30 years. We send caregivers into the home to assist you or your loved one with the activities of daily living. Don’t wait until you feel burned out, resentful or overwhelmed caring for your loved one, please contact us to help ensure your loved one is able to age in place with comfort and dignity.