Nobody loves bringing up the subject of hospice care. Nonetheless, the never welcome subject of death is unavoidable. Over the years, we have seen how discomfort around this topic has discouraged many people from taking full advantage of the benefits of hospice care until it is too late.
In this article, we list five common misconceptions about hospice care. But first, let’s understand better what hospice care is all about.
Understanding Hospice Care
Hospice or Home Hospice, works not to cure an illness, but instead focuses on end-of-life care – focusing on quality of life rather than life saving measures. Hiring hospice staff is among the kindest decisions families can make so end-of-life care for their loved one can become more peaceful and comfortable. Emotional pain and physical stress among family members are also minimized.
With hospice care, a family member is normally the primary caregiver but with additional help of hospice staff, the patient is given attention that might be out of the family member’s purview, such as the monitoring of pain management and an elevated level of hands on care. Hospice staff is usually composed of the patient’s personal or hospice physician, a hospice nurse, in-home health aide and/or social workers. Clergy or spiritual counselors are also called in to assist the patient with the spiritual aspects of passing.
The hospice team of healthcare professionals and volunteers mentioned above has the primary responsibility of managing the patient’s pain and symptoms from the critical illness they’re suffering from. This includes providing the prescribed medication for the patient, as well as the necessary equipment and medical supplies that are needed for pain management.
The hospice team also teaches the family how to properly care for the patient – such as changing adult diapers, bathing the patient and preparing the right meals according to the patient’s recommended diet plan.
Other services worth mentioning include bereavement care, short-term inpatient care and emotional and psycho-social counseling to the surviving family.
Let’s look at the common misguided thoughts people have about hospice care.
Common Misconceptions About Hospice Care
1. Hospice care is only for the last few days of life.
One common mistake people make is to assume that hospice care is only provided during the last few days of a patient’s life. In fact, it is available to anyone of any age with a terminal diagnosis and life expectancy of six months or less.
2. Hospice care is only for cancer patients.
Although the top diagnosis among patients seeking hospice care is cancer, hospice care is provided to patients with many other diagnoses. Other common illnesses include cardiac and circulatory disease, followed by Alzheimer’s disease, dementia, respiratory disease, and stroke
Hospice is also not just about providing care for the sick. Family members also benefit from hospice care in the form of grief counseling and bereavement support after the patient’s death.
3. Hospice care is only provided in a special facility, like a hospital or retirement home.
When we speak of hospice, we don’t speak of a place. Home hospice care is provided to a patient in their own home, wherever their current home may be. This could be a nursing home, hospital, residential facility or private home. Hospice care is about keeping the patient comfortable. Many end-of-life patients express a profound desire to spend this time in their own familiar home. Making sure that the patient is taken care of in surroundings he or she feels comfortable in makes end-of-life care meaningful.
4. Hospice care is expensive.
Medicare began covering advance care planning in 2016 as a separate and billable service, which means that hospice care is provided by physicians and other health professionals.
46% of all Medicare beneficiaries who died in 2014 used hospice. Medicare offers a comprehensive hospice benefit covering an array of services provided in patients’ homes.
5. Hospice care is something a physician must bring up first.
You don’t have to wait for a physician to bring up the idea of hospice care for yourself or a loved one. Whenever you feel that serious medical care is crucial to prevent or alleviate distressing symptoms, it is always a good time to seek a hospice team to assist you.
Hospice care is actually a viable option for most people and families. It always helps to get all the facts before making any decision about elderly care. Never hold yourself back from getting the right type of care for your loved one with a terminal illness. Home hospice care and non-medical home care complement each other very well and can provide an excellent support system for your loved one and the entire family. Elderlink Home Care is here to help.
There are 3 comments on this post
January 19, 2018
My mother is reaching her golden years, and she’s having a hard time managing her pain day to day, so my family has been consider hospice care for her. Your article had some great information about hospice care, and I liked how you said that this kind of care isn’t expensive, as it is provided by physicians and other health professionals under Medicare. Thanks; we’ll keep this in mind when deciding if hospice care is right for my mom.
January 19, 2018
Home hospice care is provided 99.9% by family while the company bills Medicare. Then when your loved one dies you have to figure out how to dispose of their body. Hope you didn’t have to suffer through this. I’ll never let anyone talk me into this again. Hospitals reduce their mortality index by discharging patients to hospice. You don’t have to pay for it but you get what you pay for.
January 19, 2018
Thanks for mentioning that we don’t need to wait for a physcician to suggest hospice care before bringing up the idea. My mother has been really sick for the past few months and doesn’t seem to have much time left. We’ll have to start looking for a great hospice service in our area.
January 19, 2018
That’s interesting that hospice care doesn’t necessarily mean a place, but it is about keeping the patient comfortable. I’ve been looking for different ways that I can help people. I’ll have to look further into hospice nursing jobs.
January 19, 2018
I’m glad you explained that one of the benefits of using hospice care is that they also provide grief counseling to those that are losing their loved ones. It’s not easy for anyone to lose a loved one. In my opinion, everyone should attend grief counseling to help themselves deal with the loss.
January 19, 2018
That is nice to know that hospice care isn’t as expensive as someone might think. This is something I will have to remember in case I ever need hospice care. Then I won’t have to be as stressed about the expenses.
January 19, 2018
Hospice Care is a Blessing. When they told my husband had 2 weeks to live at noon on Saturday, I called Hospice. They immediately came to the hospital and kept him pain free and helped me. I was in shock.
The first time I saw him smile in 15 years. He died on Sunday. I donated his vehicle to them. I was so Thankful to them all.
January 19, 2018
I was mislead by the hospice service. Brought my 91 yr old parent home after heart attack, various falls, afib, diabetes, not mobile and on oxygen. I was under the impression she would have 24 hr care and to my sad surprise she will only have one hr/Day of nursing assistance. They are not well off and now we are faced with having to pay $$$$$ for daily help! 😢
January 19, 2018
I am the caretaker for my wife who has mild dementia and is an amputee. I have heart failure with low ejection fraction. I and my wife believe we are doing OK. Our daughters who live in the area feel we should be on hospice. We have agreed to a evaluation by a local hospice.
January 19, 2018
Glad to read that hospice health care can be provided to our loved ones at home as the hardest task in ones life is to see our loved ones suffering pain and being helpless spectators. Medical assistance should be provided free in order to create awareness. Mental agony for family can be eased to some extent
January 19, 2018
I have incurable cancer, I am now in remission, my next CTSCAN in December, will tell me if I’ll need hospice. I was told that when the cancer comes back, it will return like A vengeance. I was told 18 months to live at the most. I am now 40 months with reg. CTSCANS. I have so many side effects from the treatments I am more prepared to die. I have 12 Doctors for each side effect, and sent for testing besides the Doctors. I’m tired.
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